Saturday, November 27, 2010
So Santa did come to town yesterday! He was here to partake in the Festival of Lights. Sofie waited all week to tell him what she wanted for Christmas and when the time came...she hid behind me. She decided that Santa is "scwarwy". But we had a blast taking in all the holiday cheer...wine tasting, food, entertainment, music and the lighting of the town for the holiday season.
We hope you are having a festive holiday weekend!
Thursday, November 25, 2010
Wishing you a day full food, football and family fun! That's how we'll be spending ours...
|Digital scrapbooking design generated with Smilebox|
Friday, November 19, 2010
Sofie's pediatrician referred us to Shriners Hospital for Children in Sacramento and we are very fortunate to have been accepted to the orthopedic program there. After several hours of x-rays and consultations on Tuesday, we have some definitive answers.
First let me say what a trooper Sofie was. She was so anxious about this experience but let the doctors do what they needed to and of course charmed the socks off of everyone. And I can't say enough about how professional and compassionate and human the staff at Shriners are. It is a very special place.
Sofie has what is called Fibular Deficiency (she is missing her fibular bone), which is what we suspected. The good news is her arm has all the bones and she does not appear to have any syndromes associated with this condition. The doctors were amazed at how well she functions...amazed. The head ortho doctor commented that "she must not have read the manual". We also discovered that one of Sofie's fingers on her right hand only has the phalanges and is sort of "floating". But again, they were very impressed with how well she uses the hand and there is really no recommended treatment.
We were given some basic information about treatment options for Sofie's leg and will go back in February to meet with the head of orthopedics to further discuss them. The concern is that the length of her leg inequality will increase as she grows, which could lead to scoliosis and hip problems.
We do have the option of doing nothing now and waiting to see what happens as she grows. Anyone who has met her will tell you that this limb difference in no way slows her down. See video below. As a matter of fact, most people we meet don't even notice there is something special about her. She can run, jump, climb and play just like other kids her age. And seriously, who can make it past this face...?
Tuesday, November 9, 2010
We are so happy to live in a place where the weather actually changes with the seasons and trees show their colors. Sofie and I ventured out with the camera this afternoon to capture some of the beauty in our little town. Of course I had to capture some shots of my little beauty too.
This is Rex, the town horse...Sofie stopped to feed him
Then we headed to our favorite spot in town...the garden
Next we strolled along looking for pretty trees...
My next photo outing will be to capture all of the colors of the fall grape vines...they are amazing.
Monday, November 1, 2010
A few photos from the carnival...
Sofie with Mia and Theo
Our friend Juliette...she was a monkey or Monkque as Sofie says
Mia was the cutest little duck
Playing with Felix and Theo